(Note: revised and abridged version HERE)
A short video featuring a gleeful little boy playing follow-the-leader with a sea lion somehow turned into a viral story that spread across the globe. That boy is my son, and I never dreamed that a visit to the zoo could be the catalyst for such a surprising chain of events and an unexpected opportunity, with my son’s permission, to share special-needs awareness.
My children love animals, and had been anxiously anticipating a visit to the National Zoo in Washington, DC. They could not wait to meet Bao Bao, the new baby panda. The first day that weather and circumstances permitted we jumped into the car for a trek up North, leaving early so that we could be on the zoo grounds before the buildings opened. Our intent was to get in line to see Bao Bao right as her exhibit opened, before the crowd got too large. Our walk to the pandas took us past the took us past the Sea Lion exhibit, and we entered an underground observation area which provided a clear glimpse beneath the surface of their watery enclosure. No one else was around. A young sea lion almost immediately appeared at the glass and stared straight at my 7-year-old son, seemingly attracted to the contrasting colors on his coat. The beautiful animal began to shadow his movements and Alex cried out, “He LIKES ME!” Little did we know at the time that the sea lion was actually a girl, named Sophie, and that Sophie regularly initiates games with her visitors. My son was simply happy that, for just a moment, Sophie was choosing to play with him. I watched it, transfixed, and then realized, “I SHOULD BE RECORDING THIS!” I fumbled for the camera, fully expecting that by the time I was ready to preserve the precious encounter it would be over. While I recorded she kept pace for several minutes, surfacing only for air. I began to make suggestions (“Move left. Freeze!”) to test if she was truly mimicking him. This caused my oldest son, Zachary, to remark, “She is TOTALLY following him!” Alex, who has an Autism Spectrum Disorder, could barely contain his joy and shouted, “THIS IS THE BEST THING OF MY LIFE!” He often struggles with feelings of isolation, as do many children with special needs, and to see him so happy and in sync with his new friend struck a chord deep within my heart. Time seemed to freeze and we were mesmerized watching the two moving together as if in a dance. There was the feeling that we were alone with a magical creature in our own beautiful world.
It was eventually time for the playdate to end, and we bid our sea lion friend goodbye to continue with our zoo visit. When we finally got to see Bao Bao (you can see the video of it here) she was ready for a nap, and she disappeared into her hidden den mere seconds after our arrival. Six-month-old babies need their rest, and Bao Bao apparently sleeps about 20 hours a day. My children were disappointed that she was visible for only five seconds, but I tried to make them feel better by stating that some people wait in line and NEVER get to actually see her. Besides, I thoroughly enjoyed those five seconds of watching that adorable baby walking by, and she was SO FLUFFY I’M GONNA DIE!
After a fun day at the Zoo we headed home. As I rode in the car I watched for the first time the footage of Alex’s sea lion encounter, smiling all the while. It slowly began to dawn on me that we had recorded something really special, due in large part to Alex’s reaction to Sophie. A quick YouTube search revealed that there were other videos of children playing with Sophie, but I still thought people might also enjoy watching ours. My husband suggested sending it to AFV, and Alex heartily agreed. If a seven year-old could have a bucket list, his would include, “Get video on AFV.” I pulled up their terms of agreement and quickly decided against that course of action, realizing that I would be relinquishing ownership of the recording. I shared the video with some friends, and they enthusiastically suggested I post it to YouTube. I presented the idea to Alex, and after some thought he agreed.
As I prepared the post I found myself faced with the difficult choice of whether or not I should mention that my son has a form of Autism. I felt that, while it could stand on its own without the extra commentary, this might be an opportunity to do more than simply share a cute video. We had possibly been given an outlet to spread special needs awareness and help counteract the negativity and stigma so often associated with the subject. Revealing that Alex has an ASD could help people understand why the playful connection between the new friends seemed so meaningful. I also thought that my son’s heartfelt cry of, “He likes me!” might resonate with other special-needs parents, since so many of our children struggle with friendships. I felt it was necessary to proceed with caution, however, and I did not want to appear sensationalistic. I also realized that there was a risk that Alex would be defined simply by a label, though there is so much more to him than that. He is enthusiastic, smart, creative, funny, and unique. He also happens to have an Autism Spectrum Disorder. Autism is NOT the main defining characteristic of who he is as a person.
I had a discussion with my husband, and we were united in our hope that any possible good that could come by sharing such personal information would outweigh the risks involved. Of course, the most important person to consult on this subject was Alex himself. He is aware of the fact that he has an Autism Spectrum Disorder, and his classmates at school know as well. I asked his permission and shared my hopes that disclosing the fact that he was on the Autism Spectrum would have a positive effect on how others viewed special needs in general. I also told him that it was ultimately his decision to make, and people would still like watching the video no matter what he decided. He didn’t have to think about it very long before he said yes. Alex is proud of his unique brain, and often likes to say, “Different isn’t bad, it’s just different.” Once we were all in agreement I posted the footage to YouTube with the title, “Sea Lion Shadow (Little boy with Asperger’s and Sea Lion play follow-the-leader)”, and waited to see if it received any reaction.
Within 24 hours “Sea Lion Shadow” had gained the attention of local media and it continued to spread from there. People seemed to respond very enthusiastically to the sight of a little boy frolicking with a sea lion, and I was happy that we could help bring a smile to their faces. The highs and lows that followed included some of the most exciting, surprising, and exhausting moments of my life. Due to the fast-paced nature of the media I was forced to make many quick decisions, some of which I now regret. I found myself struggling at times with everything that was happening, but that part of the story is best saved for another day. By the end of the first week the video had 90,000 views on YouTube, was shown on numerous local and national television news broadcasts, and had been featured on websites all over the world. Typically only one or two sentences of explanation were provided, and I wish it could have been more, but hopefully even that small bit of information helped to foster more understanding and acceptance. A few websites linked to my blog when they featured the video, and it was encouraging that so many people cared enough to click and learn more about the story behind the story. I also found it incredibly meaningful when other special-needs parents commented and shared their thoughts. Five days after the video was posted a news station where we live requested to interview us, but we were initially leery of exposing Alex to further media scrutiny. An interview felt much different from a video where his face was obscured in shadow. We finally agreed after some reassurance from the reporter that Alex would be treated with respect and not portrayed as just a boy with Autism. Alex decided that he was excited about the opportunity and was a complete natural on camera, chatting away with the reporter like he had known her forever. I am so proud of my son, not only because of how well he handled the chaos of such an eventful time, but also because I think he is wonderful. You can watch the interview here. I just wish the final product did not have to be unexpectedly trimmed due to other last-minute news stories that emerged. Most of our discussion about special-needs ended up on the cutting room floor. Such is the nature of the media.
Now that I have shared all this I feel the need to stress that Autism is a SPECTRUM, and no two children with that diagnosis are exactly alike. The saying goes, “If you’ve seen one child with Autism, you’ve seen one child with Autism.” My son is just one child with Autism, and every child is affected differently. His story is in no way a complete representation of the full reality of Autism Spectrum Disorders. I hope that a cute video of him playing with a sea lion on a good day does not in any way downplay the very real struggles that can be faced by individuals who have any sort of special needs.
I am still processing everything that has happened, as well as some hard lessons that I learned along the way. Encouragingly, the positive feedback that we have received has far outweighed the negative. I hope that means our brief journey into the wide world of media has helped in some way to contribute to the greater good. At the very least, I think it made some people smile. Most importantly, I believe that my son benefited from the experience and was treated with respect. And in the end I can say it was worth it if even one person was helped by hearing our story, or just one pair of eyes was opened to see special needs in a new light. And that is SERIOUSLY not boring!
UPDATE May 9, 2014: Sophie the sea lion was unexpectedly found dead this morning. She was only two years old. This is a terrible loss, and my thoughts are with the entire Smithsonian family. She was a beautiful, playful animal who brought great joy to those who visited her. My family is absolutely devastated. I am so glad we got to see and play with her one last time just two weeks ago. Thank you for being our friend, Sophie. We will miss you so much!